Finley – Wilms’

Finley was diagnosed with Wilms’ Tumour (Kidney Cancer) on Friday 13th February 2015, when he was just eight months old.

His Mum, Donna told us about his early symptoms…

[Finley was] ….unsettled, agitated, vomiting, and when he cut his finger, the bleeding took longer to stop than it should have done; he just didn’t want to lay on his back. He ended up in hospital, overnight, at 4 months old, as he was crying in pain continuously. But, he was only diagnosed with reflux. He was under a consultant for a few more months for reflux, but they weren’t listening to me, even when I mentioned I thought there was a problem in his abdominal area. Finally, during a trip to A & E (due to Finley vomiting and not keeping anything down), a young doctor discovered the mass. We had an ultrasound, and then, discovered the tumour.

His treatment included chemotherapy and surgery…

Finley needed four weeks of chemo prior to surgery, then surgery to remove his left kidney and the tumour.  Then, as he was stage one, but high risk, he had 29 weeks of intensive chemotherapy, including Vincristine, Actinomycin D and Doxorubicin.

Finley is now almost two years in remission, but has some side effects from the chemotherapy and only having one kidney…

  • Finley has heart echocardiograms, because there is a small chance the Doxorubicin could have damaged his heart.
  • Possible infertility.
  • Nerve pain and other problems.
  • Can’t take ibuprofen, and has to be careful to remain hydrated due to only having one kidney.

He is doing well at the moment, but tires easily, and has stomach pains. If he catches a virus, it hits him hard.

Finley has regular scans every 3 months.

Donna added that their consultant said that often Wilms’ is symptomless, apart from the mass, but this wasn’t the case for Finley.

Thank you Donna for allowing us to share Finley’s story. We wish him and your family all the very best.

If you would like to share your experiences of childhood cancer, then please do contact us via our Facebook page, Twitter, Instagram, or use the form below:

Thanks for reading.

Ziggy Zoo and Betty Too

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Our ‘Childhood Cancer Awareness Radio’ Aims

Our aims with this blog, Facebook, Twitter, Instagram, and ultimately radio, is simply:

1. To raise awareness of childhood cancer:- Awareness = Early Diagnosis = Saved Lives.

2. To give children and young people with cancer, the chance to run their own radio shows.

3. To provide entertaining and informative radio shows, with the best chat, comedy and music variety.

4. To direct donations to childhood cancer charities, for research into childhood cancer, and for support to those with cancer.

We are not here to compete with childhood cancer charities. Of course, we do need to cover our radio operating costs, but that is the only funding we need.

Let’s work together on this. We all want the same thing.

Radio can work. But, we need your support. Please share us, into your groups, on to your page, everywhere, and get some likes for us. That way, we really all can stand up to childhood cancer.

Thank you.

Jack – Rhabdomyosarcoma

Jack was diagnosed with Alveolar Rhabdomyosarcoma in July 2015.

Jack - Rhabdomyosarcoma
Jack

He underwent 11 cycles of Chemo (IVADO) and 26 sessions of radiotherapy. This initial treatment saw tumours disappear.

However, Alveolar Rhabdomyosarcoma (also known as ARMS) is very aggressive. Sadly, the cancer returned very quickly, and Jack lost his brave fight in July 2016, aged 19.

Here are his own  words….

‘My name is Jack, I’m 19 years old. I became ill last year whilst taking my A Levels. After initial problems with diagnosis, I was confirmed as having a type of soft tissue sarcoma (rhabdomyosarcoma). Initial treatments were gruelling but positive. However, soon after treatments ended, the sarcomas came back, hard. The doctors now tell me that they can’t cure me.

Sarcomas are relatively rare but are often the main cancers to affect teenagers like me. Many of my friends who are fellow patients also have this same illness. I am determined to help research into sarcomas and am already taking part in one research project, but we need more funding. Research will help us better understand the causes and identify improved treatments, saving young lives in the future.

I’m a private person and it’s been a big decision for me to share this publicly, but it’s the right thing to do. So please, please help.


Please make a donation, share my appeal with as many people as you can, especially any businesses who can help.

With your generosity, I might be able to make a difference. Help me to help others.


Thank you
Jack’

A much loved and loving young man, a bright devoted and caring son and a loyal friend with so much to live for and so many dreams. Only weeks away from starting at university when the disease took that away from him. Jack felt passionately that research into RMS was essential in order to save other young people in his situation.

His website has raised over £87K to date (October 2017).

Our thoughts are with his family and we are grateful to them for allowing us to share Jack’s story to help us raise awareness.

Ziggy Zoo and Betty Too

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