Jack – Rhabdomyosarcoma

Jack was diagnosed with Alveolar Rhabdomyosarcoma in July 2015.

Jack - Rhabdomyosarcoma
Jack

He underwent 11 cycles of Chemo (IVADO) and 26 sessions of radiotherapy. This initial treatment saw tumours disappear.

However, Alveolar Rhabdomyosarcoma (also known as ARMS) is very aggressive. Sadly, the cancer returned very quickly, and Jack lost his brave fight in July 2016, aged 19.

Here are his own  words….

‘My name is Jack, I’m 19 years old. I became ill last year whilst taking my A Levels. After initial problems with diagnosis, I was confirmed as having a type of soft tissue sarcoma (rhabdomyosarcoma). Initial treatments were gruelling but positive. However, soon after treatments ended, the sarcomas came back, hard. The doctors now tell me that they can’t cure me.

Sarcomas are relatively rare but are often the main cancers to affect teenagers like me. Many of my friends who are fellow patients also have this same illness. I am determined to help research into sarcomas and am already taking part in one research project, but we need more funding. Research will help us better understand the causes and identify improved treatments, saving young lives in the future.

I’m a private person and it’s been a big decision for me to share this publicly, but it’s the right thing to do. So please, please help.


Please make a donation, share my appeal with as many people as you can, especially any businesses who can help.

With your generosity, I might be able to make a difference. Help me to help others.


Thank you
Jack’

A much loved and loving young man, a bright devoted and caring son and a loyal friend with so much to live for and so many dreams. Only weeks away from starting at university when the disease took that away from him. Jack felt passionately that research into RMS was essential in order to save other young people in his situation.

His website has raised over £87K to date (October 2017).

Our thoughts are with his family and we are grateful to them for allowing us to share Jack’s story to help us raise awareness.

Ziggy Zoo and Betty Too

Xx

Henry – Superhero Sibling

It’s not easy being a child with cancer, and we give them a lot of attention. It’s the natural thing to do. We want to make them feel better. We mustn’t forget that often these children have siblings, and it can be a very hard life for them too. Their parents may have to rush off to hospital at short notice many times (children on treatment can suffer many side effects requiring emergency admissions), family plans get thwarted and it’s a worrying time for everyone.

While parents can sometimes take leave from work, siblings have to carry on as if everything is normal especially where the routine of school is concerned etc and that is a huge weight on small shoulders.

With this in mind we want to reach out to these Superhero Siblings and tell them that they are amazing too, that the part they are playing and their role in the family is important and they have not been sidelined.

Today we introduce Henry. He was happy to answer some questions for us, and for us to share them with you all. The answers are his own words.

Can you tell us how old you were when you were told about Hugo’s illness?

I was 6 (and a half!)

We know you work hard at school, what is your favourite subject?

Maths is my favourite, but I also like Science and PE.

When you are not at school, what is your favourite thing to do?

I like being with my family and also building lego.

If Cancer was a person, what would you tell them?

I would tell them to go away and leave our life.  You are mean to people who you give cancer to, you should be nicer.

Is there anything else you would like to tell us to help explain to other people what it is like to be Henry?

It is quite hard being Henry because Hugo has cancer and he gets more attention most of the time.  It is quite hard, but it is also fun playing with Hugo when he is well.  It’s a bit annoying being the big brother because Hugo keeps messing up things and I’m not always able to understand him and he’s not always able to understand me. It’s also nice because I get to go out more because we don’t want Hugo getting germs and we go for nice days out.

Thank you Henry for being our guest!

Siblings need a voice too
Superhero Sibling Henry

You can find out more about Henry and his brother Hugo on their Facebook page, please leave Henry a comment and let him know that he is awesome.

If you know of another sibling who deserves a shout out then you can contact us and we will give them a feature here too.

Many thanks for reading.

Ziggy Zoo and Betty Too

Xx

We want to be your voice, and give children with cancer a voice

Thank You from ZZR

Thank you to everyone who has shown an interest in Ziggy Zoo Radio so far. We are so grateful to you all because it means that we are doing something that lots of people support, and that makes us very happy. We want to be your voice, and give children with cancer a voice.

If you have contacted us to say that you would like us to share your child’s story, journey or experience (we all call it different things), then we will be sending you a short questionnaire in the next few days.

Please keep sharing our facebook page and our blog with your friends and family and ask them to share too. Did you know, we are also on Twitter? We need to get the message out there to the wider community, not just oncology families!

Best wishes

Ziggy Zoo and Betty Too

Welcome

Hello… and welcome to Ziggy Zoo Radio.

A new Internet radio station, launching in Spring 2018, to raise awareness of childhood cancer, and to provide chat, comedy, current affairs, and the best music variety programming to the wider community.

But, you don’t need to wait until Spring 2018 to get involved. We need your help and support now. Get in touch to find out the many ways in which you can help and get involved.

Together, we will raise awareness of childhood cancer and we will save lives!